Canadian Association for Porphyria/Association Canadienne de Porphyrie

Organization Description

The mission of the Canadian Association for Porphyria/Association Canadienne de Porphyrie is: to deliver evidence-based information and support to patients with porphyria, their families, health care providers and the general public across Canada, and to achieve standards and evidence-based comprehensive care for all people with porphyria throughout their lifespans.